{"id":9169,"date":"2021-04-14T09:48:22","date_gmt":"2021-04-14T09:48:22","guid":{"rendered":"http:\/\/www.nottinghamsport.com\/?p=9169"},"modified":"2021-04-14T09:48:22","modified_gmt":"2021-04-14T09:48:22","slug":"reds-goalkeeper-raising-money-in-memory-of-brother","status":"publish","type":"post","link":"https:\/\/www.nottinghamsport.com\/index.php\/2021\/04\/14\/reds-goalkeeper-raising-money-in-memory-of-brother\/","title":{"rendered":"Reds Goalkeeper Raising Money In Memory Of Brother"},"content":{"rendered":"

Canadian-born, Nottingham Forest Women\u2019s shot-stopper, Aja Aguirre, is to undertake a Glasgow-Nottingham cycling challenge in memory of her older brother, Xavier, who, in July last year, suddenly, and tragically passed away, having contracted the rare disease known as Amyloidosis.<\/p>\n

A disorder that is said to be that rare that most medical students and physicians alike my not expect to see it within their own practice, due, in part, to the symptoms in which it possesses being very similar to, and mistaken for, your more common, medical problems.<\/p>\n

That\u2019s what happened to Xavier Aguirre, the family, who live in British Columbia, Canada, having not long overcome one shock in that the siblings\u2019 mother, Fionna, had overcome a medical challenge of her own, and had undergone chemotherapy for cancer.<\/p>\n

Now 29-years-old, Aja has been in the Midlands since 2016, having first gained an honours degree in America, at Arkansas State University, before completing an MRes in Performance Nutrition at Nottingham Trent University, turning out first for Nottingham Forest Women, moving cross-Midlands to Aston Villa (2018-19), then returning to once again don the famous Garibaldi, and, as the post-season saw a number of friendlies, would don the captains armband for the first time, in a 3-2 win away to Lincoln Women.<\/p>\n

Although thousands of miles continue to separate Aja and her family, they remain close, but the passing of Xavier, at just 30-years-old, rocked them to the core.<\/p>\n

\u201cLast year was undoubtedly the worst year many of us have experienced in our lives,\u201d began Aja.<\/p>\n

\u201cThe pandemic brought the start of a massive decline of quality of life for a lot of people, and for myself, and my family, there were other events happening at the same time that blindsided all of us and changed our lives, horribly, forever.<\/p>\n

\u201cXavier’s passing was sudden, unexpected, and harsh. For these reasons, it’s very difficult for me to put the sequence of events into words. I still struggle to believe that something like this could ever happen – especially to someone like my brother Xavier.\u201d<\/p>\n

When the call came through, initially from Aja\u2019s father, Tony, Aja was overcome with a mixture of emotions, emotions that would, quite quickly lead her, into heading back home, to Canada; everything had become quite serious, quite quickly.<\/p>\n

Between 25 June and 10 July, first at the Burnaby General, then the Royal Columbian, and finally Vancouver General, Xavier\u2019s life began to decline, rapidly before, eventually, at the latter, and after enduring numerous tests, including a liver biopsy (at Royal Columbian), he was, eventually, diagnosed with Amyloidosis.<\/p>\n

The prognosis wasn\u2019t good at all and, although there were options, the one thing they didn\u2019t know was how far the condition had progressed.<\/p>\n

Xavier suffered a heart attack (at Vancouver), and, still being updated via video-calls, Aja completely broke down, knowing, right there and then, that she needed to be back home, in Canada.<\/p>\n

Amidst a global pandemic, and whilst travelling, the hospital put all in place in accordance with Covid guidelines to ensure Aja\u2019s arrival wasn\u2019t hindered, and, for Aja, she managed to take hold of some final moments with her elder brother.<\/p>\n

\u201cWhen I walked into the room, the sight was shocking,\u201d a tearful Aja added, \u201cXavier was in the bed hooked up to all these different machines, and he was unconscious.<\/p>\n

\u201cI spent the next few hours beside him, holding his hand and speaking to him in hopes that he would hear me and fight through (before being asked to leave).<\/p>\n

\u201cAlthough I had been told the day before that a call back meant it was worst case scenario, at the time I didn’t piece together the implication of this.<\/p>\n

\u201cWhen my parents returned, they joined Kyan (Aja\u2019s younger brother) and I to speak to the three doctors; they told us that Xavier\u2019s organs were not strong enough to come back and sustain themselves, and that they had been increasing the amount of life support drugs into him just to keep ticking.<\/p>\n

\u201cWe were going to have to pull the plug on him; it wasn’t presented as a choice, as there was no other option; his organs simply couldn’t keep him alive any longer.<\/p>\n

\u201cThey allowed us our final moments with him, where we said our last goodbyes and played him some music that he likely couldn’t hear.<\/p>\n

\u201cWhen they finally pulled the plug at exactly 8pm, he lasted less than a minute until his heart stopped beating.<\/p>\n

\u201cWe were left with nothing more to do but weep. Just 19 days after learning he was ill, my brother Xavier had passed away. He was 30 years old.\u201d<\/p>\n

Now, as time approaches the first anniversary of the passing of Xavier Aguirre, sister Aja, on Global Rare Disease Day (February 28), announced that she\u2019ll be embarking on a fundraising bike ride in aid of Amyloidosis research, an announcement that would see, in a little over a month, raise over 5k, a total she hopes to at least double before she embarks on the ride.<\/p>\n

To do this, between 10-16 July, Aja will be cycling the 500km journey between Glasgow and Nottingham and funds raised will be split between the National Amyloidosis Center (NAC) in London, and Mayo Clinic in America.<\/p>\n

To keep up-to-date with Aja\u2019s journey over the next few months, you can visit \u2018Journey to Amyloidosis Awareness: Xavier\u2019s Legacy\u2019 through Facebook<\/a> and you can donate via Just Giving here<\/a>.<\/p>\n

\"Peter-Mann<\/p>\n

*Article provided by\u00a0Peter Mann<\/a>\u00a0(Senior Correspondent).<\/em><\/p>\n

*Main image @Aja_Aguirre_18<\/a> Aja with her brother Xavier who passed away last July.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Canadian-born, Nottingham Forest Women\u2019s shot-stopper, Aja Aguirre, is to undertake a Glasgow-Nottingham cycling challenge in memory of her older brother, Xavier, who, in July last year, suddenly, and tragically passed away, having contracted the rare disease known as Amyloidosis. A disorder that is said to be that rare that most medical students and physicians alike […]<\/p>\n","protected":false},"author":1,"featured_media":9170,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[2,14],"tags":[319,6,16,326,71],"class_list":["post-9169","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-football","category-nottingham-forest","tag-charity","tag-football","tag-nottingham-forest","tag-peter-mann","tag-womens-football"],"yoast_head":"\nReds Goalkeeper Raising Money In Memory Of Brother - the Nottingham Sport<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.nottinghamsport.com\/index.php\/2021\/04\/14\/reds-goalkeeper-raising-money-in-memory-of-brother\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Reds Goalkeeper Raising Money In Memory Of Brother - the Nottingham Sport\" \/>\n<meta property=\"og:description\" content=\"Canadian-born, Nottingham Forest Women\u2019s shot-stopper, Aja Aguirre, is to undertake a Glasgow-Nottingham cycling challenge in memory of her older brother, Xavier, who, in July last year, suddenly, and tragically passed away, having contracted the rare disease known as Amyloidosis. 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